THANK YOU FOR YOUR CONTINUED SUPPORT!
THE GROWN UPS BENEFIT #TGUB
THE GROWN UPS BENEFIT #TGUB
Helping People Help Others
Golf 2023 Beneficiary is Kynleigh Rae...her story Below
Lynleigh’s Story
Monday, May 22nd, 2023, Lynleigh’s journey began. Her mother & nana (Emma & Carol), took her to the pediatrician because she wasn’t feeling well. They told us she had an “oozing” ear infection, a yeast infection in her diaper area & a staph infection on her head for which they referred her to a dermatologist. We treated her infections with prescribed medicine for one week & took her back to the pediatrician on 5/29 because nothing seemed to be healing. They prescribed more medicine. We took her back to the pediatrician again 5/30 because she woke up with a loss of balance. They assumed she had an inner ear infection & referred her to an ENT.
On 6/2 Lynleigh took a turn. When she woke up she began vomiting & could not sit nor stand because of a lack of balance. We took her to an urgent care emergency department. The ED doctors assumed again that this was an inner ear infection & sent us straight to an ENT. The ENT cleaned her ears out & explained to us that her ear infection was not bad enough to cause her lack of balance. Then we realized there was something more serious going on. They sent us to an emergency room where they did a CT scan. They noticed what looked like fluid— possibly in her brain, so they did another CT scan to take a closer look. They discovered a mass— not in her brain, but in her head, close to her mastoid. They still didn’t know what it was so they sent us to a children’s hospital, where we were admitted for 5 days. 6/3 the children’s hospital did an MRI on Lynleigh’s brain & discovered a 3cm mass pushing on her mastoid and touching the meninges, which wrap around the brain. They still didn’t know what it was. Monday, June 5th, they performed a biopsy on the mass, and found that it was a tumor, caused by Langerhans Cell Histiocytosis (LCH). LCH is a rare, treatable yet incurable, cancer-like disease which affects only 5 in one million children. The LCH was also the cause of the supposed staph infection & yeast infection. The biopsy test results also revealed a BRAF mutation, making the LCH more difficult to treat & much more likely to come back. We made a plan to start chemotherapy treatments 6/20. However, 6/16 Lynleigh caught a fever of 101.8 from her cousins. The next morning she woke up with a rash all over her body. Since this was a new occurrence, we took her back to the ER that evening. They said the rash was caused by the fever & should come and go for a little while. The rash did not come & go; instead it got worse. We took her to the ER once more on 6/19 where they admitted her again. The rash was most likely caused by the fever but presented differently & worse because of her LCH. The next day, everything proceeded as planned. They took her for a PET scan, the port placement, & then she had her first chemotherapy treatment the night of the 20th.
When the results from the PET scan came back, we found out she has LCH in her mastoid, ear canal, her skin, lymph nodes, her thymus gland & her spleen. These placements make the LCH much harder to treat…but not impossible. We will trust God throughout this journey & believe that He will bring Lynleigh Rae through to a life of health, fun, & being a kid.
donate here for Lynleigh Rae
$0.00
YOUR SUPPORT HELPS LYNLEIGH RAE & HER FAMILY. IF YOU FEEL LED TO GIVE, CLICK THE DONATE BUTTON ABOVE, OR REACH OUT TO ANY OF OUR BOARD MEMBERS: JOEY & MICHELLE HILBURN, REGINA SECHREST, KATINA BAILEY, RICKY HILBURN & KELLY OWENBY.
THANK YOU ALL.
About #TGUB
The Grown Ups Benefit is a Christian based organization providing hope, love & financial assistance for families in our Local communities that are experiencing economical hardships brought on by a health crisis. we organize many events for local beneficiaries, Assist when called upon for those in need at brenner's, support "run five feed five", & provide scholarships to deserving seniors from Several area high schools. At The Grown Ups, #tgub has expanded to school supply drives & a red cross bloodmobile in 2020! we believe in enabling people to live out our motto of "Helping People Help Others".
THANK YOU TO OUR 2022 SPONSORS!!
Our Team
Our History
Our History
Our team consists of
Joey, Regina,
Ricky, Kelly,
Michelle & Katina.
You may contact any of our team members about
events, to register,
to make a donation
or with any questions!
Our History
Our History
Our History
Our 1st event, a baseball game in 2015, was to help was Trinity High Alum Archie Barnes who was battling a terminal diagnosis.
With great support from the
community, TGUB has been
able to grow yearly
& help numerous families!
Contact Us
Have a Question? Want to Volunteer?
Contact any of our board members for opportunities to volunteer at a #TGUB event or drop us a line below!
Joey...Regina...Ricky... Kelly...Katina...Michelle
